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Saturday, September 7, 2013

Update on Phoebe & Jaxson

Revelation 21:4 ESV

"He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore, for the former things have passed away.”

Some days are better than others for Phoebes…she is pretty emotional right now and that can be difficult for everyone. The car seems to soothe her and help her sleep so we have been doing a lot of driving. Nathan drove around town for 5 hours the other day so she could sleep well. She seems to feel more comfortable sleeping at an incline, likely from the pressure in her head. She won’t eat much else besides popsicles and sometimes ice-cream although she’ll ask for 5 different things trying to find something to make her feel better.
Today she grabbed her little noggin and took off at a full run trying to escape the pain. I remember her doing this before she was diagnosed with the first tumor and it is disheartening to see again. I am hopeful that we will see improvement as the radiation does it’s job reducing the tumor size.
For now, she needs relief, the boys need grace for her mood swings and we just need prayer. Thank you for surrounding us with your love and support.

Well there's good news and bad. The good is his xrays are looking better! Lungs are becoming dry and expanding. Bad news is he can't keep up his o2s for nothing tonight. This mask he's wearing isn't even working well. I am praying so hard that he doesn't have to go on a ventilator because that will be a HUGE setback. Tonight has been plain awful. 

Thank you for your continued prayers for these dear sweet children who are suffering more than any child should

2 Corinthians 1:3-4 ESV 

Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our affliction, so that we may be able to comfort those who are in any affliction, with the comfort with which we ourselves are comforted by God.

Praying and praying,


  1. I hope things get better for Phoebe.

    1. Hi Tim,
      Me too. I sure would love God to work a miracle here.



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