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--February 22 2017--

Thursday, September 26, 2013

Epidermolysis Bullosa, EB

Sometimes I don't hear any updates on the children I'm praying for. Ava Rose is one little girl that I haven't heard how she's been doing in awhile. Ava suffers from Epidermolysis bullosa, EB, the nasty disease that all it takes is a little rub and the skin blisters and comes off leaving an open, raw sore. Apparently, though, Ava has been doing amazingly well! Praise GOD!!! Here is a Facebook update, Praying for Ava Rose, on Ava from her aunt...

Ava Rose
So many wonderful things happening for Ava right now - forgive our absence as we've been rejoicing and just plain having a blast with her!
I don't often get to spend much time with Ava as I live in Baltimore and she lives in New Jersey, but the other week I had the privilege of getting some one on one time with her when she was in SUCH a fantastic and hysterical mood! I know my family keeps telling me that these times are often, but I usually don't get to witness them in my short periods of time with Ava and let me tell you - what a heart swell I had as she kept grabbing my hand to walk around my parents' house, jump on the bed, "scare" Papito and Aunt C, dance, and laugh her little precious head off as we goofed around. She was being a normal and happy two year old and while I know everyone else gets to witness this often, I do not and it made me so SO happy to get that window of opportunity with her.
Ava has been having regular iron infusions which have helped so much with her healing process. Many of the abrasions on her face are shrinking day by day and the one that was on her eye earlier this year (that at that point kept growing and growing) is all but gone right now!
We praise God for the blessing of Ava's life and that He sees us fit to be her family and we are now rejoicing together in these happy and wonderful moments that we get to share with her.
There is still pain, and there are still moments of hurt and misery - but there are so many more of hope, love, joy, happiness, and healing. Thank you all for your love, prayers, and constant support. You're all pure amazing.
- Monica (Ava's Aunt Monkey)

Children are so amazing! It seems no matter the kind of difficulties they must endure they tend to thrive. No wonder Father tells us to be like little children. They are trusting, loving, forgiving, positive and in extreme discomfort they can still be joyful and they bounce back from sickness really quickly.
Matthew 18:1-5 ESV
At that time the disciples came to Jesus, saying, “Who is the greatest in the kingdom of heaven?” And calling to him a child, he put him in the midst of them and said, “Truly, I say to you, unless you turn and become like children, you will never enter the kingdom of heaven. Whoever humbles himself like this child is the greatest in the kingdom of heaven. “Whoever receives one such child in my name receives me, ...


  1. How beautiful that this gorgeous little girl is healing. Praise the Lord. It is true that little children do not carry the burden of worldly knowledge and wisdom within their minds and so they do not have the destructive negative thoughts of those whose minds have been filled with it. May we all be more like little children in our relationship with Jesus.
    God bless

    1. Hi Brenda,
      Ava sure is a doll and I am so thrilled to see such a good report on her.
      Yes!! For us to be like children, untainted by the world.

      Blessings sister,

  2. How sweet of you to post for others sake, letting us know how to pray for them. My 4 year old grand daughter is Ava Jo so I will be able to remember this one for prayer. Bless you.

    1. Hi Betty,
      This blog is for others as Jesus leads. Intercession for those who are in need be it public or private.
      I love the name Ava Jo! Thank you for your prayers, I know Ava's family really appreciates them.

      Blessings sister,


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