Update on Phoebe & Jaxson

Revelation 21:4 ESV

"He will wipe away every tear from their eyes, and death shall be no more, neither shall there be mourning, nor crying, nor pain anymore, for the former things have passed away.”

Phoebe, An ATypical Miracle

 
Some days are better than others for Phoebes…she is pretty emotional right now and that can be difficult for everyone. The car seems to soothe her and help her sleep so we have been doing a lot of driving. Nathan drove around town for 5 hours the other day so she could sleep well. She seems to feel more comfortable sleeping at an incline, likely from the pressure in her head. She won’t eat much else besides popsicles and sometimes ice-cream although she’ll ask for 5 different things trying to find something to make her feel better.
Today she grabbed her little noggin and took off at a full run trying to escape the pain. I remember her doing this before she was diagnosed with the first tumor and it is disheartening to see again. I am hopeful that we will see improvement as the radiation does it’s job reducing the tumor size.
For now, she needs relief, the boys need grace for her mood swings and we just need prayer. Thank you for surrounding us with your love and support.
-amey

Jaxson Eugene, Facebook

Well there's good news and bad. The good is his xrays are looking better! Lungs are becoming dry and expanding. Bad news is he can't keep up his o2s for nothing tonight. This mask he's wearing isn't even working well. I am praying so hard that he doesn't have to go on a ventilator because that will be a HUGE setback. Tonight has been plain awful. 

Thank you for your continued prayers for these dear sweet children who are suffering more than any child should. 

2 Corinthians 1:3-4 ESV 

Blessed be the God and Father of our Lord Jesus Christ, the Father of mercies and God of all comfort, who comforts us in all our affliction, so that we may be able to comfort those who are in any affliction, with the comfort with which we ourselves are comforted by God.

Praying and praying,
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Awake, awake!!

Isaiah 51:9 ESV
Awake, awake, put on strength, O arm of the Lord; awake, as in days of old, the generations of long ago. Was it not you who cut Rahab in pieces, who pierced the dragon?

Love The One

Confession:

I have not read the book 'Awake' but I am trying, for the past 10 years or so, to live my life fully awake for the Lord. 

Does world poverty overwhelm you? 

Do you think that it is just too big so you just ignore it? 

Sometimes I think that if I do anything it will go unnoticed. How can just one person, like me, make a difference in this huge scale of poverty, or sickness. I thought, how can this blog make a difference for God. 

How? 

Proverbs 21:13 ESV
Whoever closes his ear to the cry of the poor will himself call out and not be answered.

One person at a time, loving on one person at a time

Love the one. 

Romans 13:11 ESV
Besides this you know the time, that the hour has come for you to wake from sleep. For salvation is nearer to us now than when we first believed.

Our Lord is ready to take over if we will only take the first step in helping those who are in need. 

Love the one and He will multiply that into hundreds and thousands. 

I'm sure lots of you are doing this already but if you haven't yet maybe you might be interested in checking out these sites:

Sponsor A Child

Cause Life

Operation Baby Rescue

If you are looking for some motivation why don't you check out the book 'Awake' by Noel Yeatts. I watched a few of the above trailers and I found what she had to say was full of passion and love for the one.

In March 2012 I did a post on Love The One

This post was centered around Heidi Baker and a message of just loving the one, that is what we need to do. If you want a bit more motivation please check it out here.

Remember Love The One

Update on:

Jaxson Eugene

My babies heart surgery was an absolute success!!! Things couldn't have gone any better!!! He doesn't have a breathing tube, he's breathing all on his own already!!! He still has the chest tubes but that's completely normal!! I just want to thank each and every one of you for all your prayers and all your love!! You all are the reason everything turned out so perfect! I can't even express my appreciation and my gratitude!!! I love you all so very very much! I thank god for the miracle and I think him for all that he has done!! I'm just so happy! Thank you God!!!!

Thank you for praying for Jaxson!! Please keep the prayers coming for a quick recovery and for a perfect functioning heart.

PRAISE GOD!!

Psalm 100:1-5 ESV
A Psalm for giving thanks. Make a joyful noise to the Lord, all the earth! Serve the Lord with gladness! Come into his presence with singing! Know that the Lord, he is God! It is he who made us, and we are his; we are his people, and the sheep of his pasture. Enter his gates with thanksgiving, and his courts with praise! Give thanks to him; bless his name! For the Lord is good; his steadfast love endures forever, and his faithfulness to all generations.

Blessings,
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Phoebe, Jaxson & Sam

Phoebe

Phoebe is doing very well, all things considered. She is tolerating the radiation treatments well, although the side effects will primarily begin to show up in a week or two from now. She should also be feeling some relief from the tumor pressure and that should continue to improve over the next 2-3 weeks. .........
....... We are holding up well, by the grace of God, though sometimes a flash of pain so intense comes over me I can hardly breathe. It’s usually in those moments that I have jumped ahead of God and imagined a life without that sufficient grace. If I stay in the moment, I do well.
Your prayers, encouragement, stories, good works and empathies are a lifeline for us,
~Amey

Jaxson Eugene

Heart surgery is scheduled for next Wednesday the 4th!!!!! Here we go!!!!

Cancer Awareness and Support

Samuel Sartin

Hi! My name is Sam. I'm 3.5 years old and I am a neuroblastoma cancer survivor.
When I was only four months old I was diagnosed with stage 4 neuroblastoma cancer. I had to have lots of surgeries, take 6 rounds of yucky chemo, 12 rounds of radiation, two stem cell transplants, and antibody therapy which I really didn't like. But the doctors told my mom that my cancer is "stable." But all I know is that I'm awesome!
I hope that you'll donate to CureSearch for me -- or maybe even join my team and walk WITH me! If you can't walk, you could maybe join as a "virtual walker" to raise money on my behalf! That would be so cool!
Thank you for your support and for donating to help me and other kids like me!
Love,
Sam

Thank you for your continued support in prayer for Phoebe, Jaxson and Sam.

Ruth 2:12 NIV
"May the Lord repay you for what you have done. May you be richly rewarded by the Lord, the God of Israel, under whose wings you have come to take refuge.”

1 Thessalonians 5:17 ESV
Pray without ceasing,

Blessings in Christ Jesus,
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Cancer Stinks!

Proverbs 4:20-22 NIV

My son, pay attention to what I say;

    turn your ear to my words.

Do not let them out of your sight,

    keep them within your heart;

for they are life to those who find them

    and health to one’s whole body.

Joey Needs a ton of prayer right now as he has taken a turn for the worse. Taken from CaringBridge site.

...things have gotten progressively worse over the last two weeks. What a nightmare. We wanted to again ask for your prayers. Joey can barely communicate w/us, is very tired (from having to breath so fast) and is having trouble breathing (labored). We need God to intervene and stop what otherwise will be a horrific next few days. There are some signs that it might be hours not days. ...

Jordan is in hospice house and is losing the feeling in his legs. Below is taken directly from his blog.

...The reason we came to Canuck Place was to explore two options for pain management until Jordan's healing. Both are harsh but one has become dangerous due to the seemingly rapid progression of numbness throughout his body.  So in many ways we are backed into a corner....

...And what we had thought would be a few days, (I packed for 5 to be on the safe side) suddenly has no end in sight...that all by itself was a tough one....

...In a text I received this morning, Reece asked me if I was scared.  And I was surprised, after checking, that I was more mad/frustrated than scared.  For crying out loud, he just wants to sit up or lie on his side.  And late last night and this morning, eating became increasingly difficult, stealing some of the joy from one of his few pleasures.  This is wrong on soo many levels....

Lucy has been pretty sick and so her scans were canceled  I am not sure when they are going to do them as there has been no information put up yet. 

Scarlett will be having surgery to remove this unknown mass from her brain after the American Thanksgiving. Click on her name to go to her blog and check out the scans. Please pray this is nothing to be of concern. 

Joy had a set back. The following is taken directly from her Facebook page...

Joy is back on the ventilator. She was working very hard to breathe and her sats were getting low. While we are disappointed at this step back, we are not discouraged. We know who holds her future and He will never leave us alone. 

We are blessed.

Please keep these children in your prayers. God is listening and we just need to keep on pressing in with faith. Thanks!!

On another note please keep Israel and her leaders in your prayers as there is now a chance of a 7 weeks war to happen. Check out the post from Joel Rosenberg. Below is taken from the post.

...Israel's Home Front Command has been ordered to tell the nation to prepare for 7 weeks of war.

75,000 IDF reserve soldiers are definitely being called up for action -- up from 30,000 on Thursday, and 16,000 on Wednesday. ...

God Bless,

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