Lucy

Hi folks!

I have been busy!

I wanted to give you all a quick update on Lucy. She recently had scans and they came back CLEAR! Do I hear an amen?! This sweet girl who the doctors thought wouldn't make it is thriving,
growing and just doing so well.

Thank you all for faithfully praying, for stopping by here often just to pray over these children who I have shared on the prayer page. Your prayers are being answered with healing here on earth for Lucy. Please keep her covered and also the others whom I have had no updates on.

Blessings,
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Update on Jaxson & Lucy

Jaxson Eugene

 

Here is the latest update on Jaxson:

 I thought I had posted another update but with the lack of sleep I must have forgotten!! Sorry prayer warriors!!! Jaxson is very stable and doing wonderful! He's got a lot of neurological problems but they dont believe it hurts him in anyway. Now we are just waiting to hear from cardio. I think things will be better if they could just fix his broken heart already

Lucy's surgery went well!

Here is the update from Kate, Lucy's mom 2 Kids, a Mini Van and a Mortage...

I am happy to report that Lucy came through her surgery with flying colors.  She was a little sore this morning (and again tonight) but she went to school today and did great.  She will have to take it easy for the next 10 days while her incision heals, but she is going to be just fine.  I just want to thank you all for continuing to pray for our girl.  I know that many more stories of precious, sick children have come your way and it would be so easy to move on from our family.  We know this and we appreciate the prayers that are lifted on her behalf every single day. 

 Lucy will be having some renal studies done during her next week of visits, which is rapidly approaching.  Sept 3,4 & 5 will be our next "hurdle" to overcome.  We are praying for clear scans but we are also praying for fully functioning kidneys and clear tests.  We ask that you please join us.  Until then, we will continue on with life as normal.  Even though it seems impossible at times, with God's help we take it a day at a time.  

Thanks for praying!! 

Hebrews 13:15-16 NIV

Through Jesus, therefore, let us continually offer to God a sacrifice of praise—the fruit of lips that openly profess his name. And do not forget to do good and to share with others, for with such sacrifices God is pleased.

Blessings,

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Summer time & prayer requests

I hope you are all having a wonderful summer. I sure am! Busy!! That is what my summer has been so far, very busy. I'm up early in the morning and the minutes seem to fly by and the next thing I know I am exhausted and ready for bed. I have had very little computer time this summer, and although I miss my online friends, I have enjoyed the break from the screen. School is starting up again in about 3 weeks time and this year it will be a bit different. I don't have any high schoolers at home. My daughter is finishing off her Bachelor of Science program and my son is starting his first year in university. :) He will do his first year at home with an online program and then September 2014 will find me free from the 17 years of homeschooling and on my own. Already I am mourning this soon to happen change.

There are a couple of prayer requests for Phoebe and Lucy. 

Here is a little snippet from Phobe's blog An Atypical Miracle...

Grief is a strange animal. One moment I’m fine, the next I am blubbering to Benjamin on the way home from the grocery store about Phoebes and life and how it will change. Most days are good; I try to stay in the moment lest I use up these precious hours with pre-mature self pity and sadness. I know it’s God and that yes indeed His grace IS sufficient, because it oft occurs to me that I should be plummeting into the depths of despair right now. There is a super-natural buffer that He is manifesting in my life that keeps me even-keeled and from teetering over the precipice. ...

This is a very difficult time for Amey, Nathan and the family. Please, when you think of them, pray for Father to intercede and carry them through these precious days in front of them. They have one of their sons, Deacon, going through counseling already as he is having a very hard time dealing with the news of the return of cancer in Phoebe. Thank you for your prayers and for your caring hearts!

Lucy, will be having scans on September 4th. Please pray these scans are clear and show no signs of cancer. Thanks!!

Psalm 88:1-2 NIV
Lord, you are the God who saves me;
day and night I cry out to you.
May my prayer come before you;
turn your ear to my cry.

Praying and praying!!

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Some Updates udated with 2nd part

Lucy:

All is fine for Lucy. :) There is a pretty amazing video that was done on Lucy's Story, part 1. You can 2 3 Kids, a Mini Van and a Mortgage Part 2 should be up shortly. Since I don't have permission to show it on my blog, you can see it on their blog.

Here is the link to part 2 found at 2 3 Kids, a Mini Van and a Mortgage. 

 

 Easton:

This facebook page was removed but just today I found another page up and running and I was

thrilled!! Easton had a trach placement and he seems to be doing really well. Please keep him in your prayers as this child has such a fight in front of him. 

           2 Corinthians 1:20 NIV

For no matter how many promises God has made, they are “Yes” in Christ. And so through him the “Amen” is spoken by us to the glory of God.

Please continue to pray and pray for these dear, sweet children. Thanks!!!
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Great Is God's Faithfulnees

 LUCY

Her scan results are CLEAN! Thank You GOD!! 

What a relief and a joy for the Krull family and us. Here is what Kate said...

Praise God! Praise God! Clean scans. We were told that they actually saw improvements in some areas they were watching. There was a build up of fluid that may need to be addressed but our sweet baby remains cancer FREE!!!

Lamentations 3:22-24 NIV

Because of the Lord’s great love we are not consumed,

    for his compassions never fail.

They are new every morning;

    great is your faithfulness.

I say to myself, “The Lord is my portion;

    therefore I will wait for him.”

Rejoicing in the LORD!

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Lucy's Scans

Lucy's scans were clear!! Thank You God! Please keep praying for her as she has a sinus infection and because her immune system is low it could become something worse. Thanks!

I'm linking up with Barbie, Fresh Brewed Sunday.

Blessings,

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Cancer Stinks!

Proverbs 4:20-22 NIV

My son, pay attention to what I say;

    turn your ear to my words.

Do not let them out of your sight,

    keep them within your heart;

for they are life to those who find them

    and health to one’s whole body.

Joey Needs a ton of prayer right now as he has taken a turn for the worse. Taken from CaringBridge site.

...things have gotten progressively worse over the last two weeks. What a nightmare. We wanted to again ask for your prayers. Joey can barely communicate w/us, is very tired (from having to breath so fast) and is having trouble breathing (labored). We need God to intervene and stop what otherwise will be a horrific next few days. There are some signs that it might be hours not days. ...

Jordan is in hospice house and is losing the feeling in his legs. Below is taken directly from his blog.

...The reason we came to Canuck Place was to explore two options for pain management until Jordan's healing. Both are harsh but one has become dangerous due to the seemingly rapid progression of numbness throughout his body.  So in many ways we are backed into a corner....

...And what we had thought would be a few days, (I packed for 5 to be on the safe side) suddenly has no end in sight...that all by itself was a tough one....

...In a text I received this morning, Reece asked me if I was scared.  And I was surprised, after checking, that I was more mad/frustrated than scared.  For crying out loud, he just wants to sit up or lie on his side.  And late last night and this morning, eating became increasingly difficult, stealing some of the joy from one of his few pleasures.  This is wrong on soo many levels....

Lucy has been pretty sick and so her scans were canceled  I am not sure when they are going to do them as there has been no information put up yet. 

Scarlett will be having surgery to remove this unknown mass from her brain after the American Thanksgiving. Click on her name to go to her blog and check out the scans. Please pray this is nothing to be of concern. 

Joy had a set back. The following is taken directly from her Facebook page...

Joy is back on the ventilator. She was working very hard to breathe and her sats were getting low. While we are disappointed at this step back, we are not discouraged. We know who holds her future and He will never leave us alone. 

We are blessed.

Please keep these children in your prayers. God is listening and we just need to keep on pressing in with faith. Thanks!!

On another note please keep Israel and her leaders in your prayers as there is now a chance of a 7 weeks war to happen. Check out the post from Joel Rosenberg. Below is taken from the post.

...Israel's Home Front Command has been ordered to tell the nation to prepare for 7 weeks of war.

75,000 IDF reserve soldiers are definitely being called up for action -- up from 30,000 on Thursday, and 16,000 on Wednesday. ...

God Bless,

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We His Flock Praise Him

PRAYER

Lucy is having scans this week and the scan anxiety is setting in on the family. Jack, Lucy's brother is having terrible asthma attacks and it just seems chaos is happening. Please pray for NED (No Evidence of Disease) for Lucy, relief from asthma for Jack and peace in the family. Thanks!!

PRAISE

Phoebe had scans on Monday and they were clear!! There is no evidence of disease but she still must undergo chemo for a while yet. Please keep praying for this precious doll.

Ian has had his scans and they were stable and he is now completed the chemo therapy. He still has many issues to overcome and because the scans were only stable, he will be having follow up scans every 2 months instead of every 3 months. Please keep him in your prayers and his mom too as soon to come on the scene is adorably loved baby number 9. :)

Psalm 95:1-7 NIV

Come, let us sing for joy to the Lord;

    let us shout aloud to the Rock of our salvation.

Let us come before him with thanksgiving

    and extol him with music and song.

For the Lord is the great God,

    the great King above all gods.

In his hand are the depths of the earth,

    and the mountain peaks belong to him.

The sea is his, for he made it,

    and his hands formed the dry land.

Come, let us bow down in worship,

    let us kneel before the Lord our Maker;

for he is our God

    and we are the people of his pasture,

    the flock under his care.

Praising and praying!
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Lucy Sunshine

Hello all!!!

I have some super Sunshine for this week and it all has to do with Lucy. Below is taken directly from Lucy's blog, 2 3 Kids, a Mini Van and a Mortgage.  

Lucy had a weigh in.  Drum roll......... 17 kilos!!!!!  That's 37.4lbs, baby!  38 lbs is what Lucy weighed the day she was diagnosed.  February 23, 2011.  She is almost there.  With the way she has been eating lately I bet she hits it by next week.  I am going to buy stock in Eggo's waffles and syrup. 

The best news of the day is that her most recent pathology and cytology reports came back and there was NO sign of cancer or infection in her brain.  When the holes were drilled in her skull the fluid that was expelled was a little questionable.  I haven't really mentioned it to anyone because honestly, it was just easier to not talk about.  There was a collective sigh of relief in the room once Dr. B told us the news.  Thank you God!  We still don't have an answer as to why she retained the fluid in the first place, which unfortunately means that we don't have a definitive way of preventing it from ever happening again.  We will be standing vigil though.  Always looking for changes.

This is totally God's hand here. If you recall, Lucy had quite the scare only in June as she was deathly ill and her mom thought she was going to die. Lucy was blind, having seizures and the doctors thought the cancer had returned. They even did a scan that showed the cancer had returned and they had given her no hope. Only later did they look again at the scan and started questioning their judgement. With many, many people praying all over the world, Lucy's eyesight returned and the doctors saw that there was NO cancer in her brain. Since then she and her family have been on quite the ride as they have had to deal with seizures but the most amazing news is this new post from her mom. There is NO sign of cancer!! PRAISE GOD! You can read it all here in The Post That's Needs To Be Read If you are interested in reading the whole story, please visit Lucy's blog and read the posts put up in June and the last post from May.

I'm linking up with Summer for The Sunshine Project. 

Exodus 15:1-3 NIV

“I will sing to the Lord,

    for he is highly exalted.

The horse and its rider 

    he has hurled into the sea. 

The Lord is my strength and my song;

    he has become my salvation. 

He is my God, and I will praise him,

    my father’s God, and I will exalt him.

The Lord is a warrior; 

    the Lord is his name. 

Praising and praising GOD!

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News, Updates & Prayer

Well, the in laws are gone and I have a few days of quiet before my family and I leave on our camping/hiking/farming/wedding trip. I had a couple of weeks that were full of work and fun times with my husbands parents and siblings and their children. My house was full!! The one thing I really missed was my alone time God. I was missing Daddy so much that as I was washing the heap of dishes I had tears streaming down my face as I thought about my quiet, very early morning time with Father. You see my father in law is an early riser just like me and no matter how early I got up he was already up and at it. :) So since I didn't have the time to spend alone with God, I looked for God qualities in my father in law. I found: security, wisdom, knowledge, love and joy. These are things that I never saw before as my father in law is not a Christian but as I looked at him in the view of my heavenly Father I was able to see things in him that mimicked my Daddy. Really, God is so good all of the time!

NEWS:
Do any of you remember Lon from Humble Path? Well, just a few days ago I received an email from him and he told me he has chosen to follow Jesus again. He has closed down his blogs as he feels embarrassed from flipping back and forth from Buddhism to Christianity, but he wanted to let me know his decision and he gave me permission to tell all of you. Here is the email he sent me...



Thanks again, my Sister in Christ!!!
I know where my wife is going to go seeing she has given her life over to her Lord and Savior Jesus Christ which is going to be in heaven to spend Eternal Life with Him, and today, I just couldn't stand the thought of not spending my life with her in this marvelous place called heaven.  Plus I'd love seeing you and my other Sisters and Brothers in Christ when I get there.  But here's the catch, for me, I don't want to be left behind, and I don't want to have Jesus Christ say that He doesn't know me when He returns.  This is why I had to return my life over to my only Lord and Savior which is Jesus Christ otherwise my conscious will become burned to the point that it will be too late for me.  I in no way wish to be reincarnated for say until I get it right, because I'll never get it completely right.  Therefore I must choose, and that choice for me, had to be the gift that's free, which is Eternal Life through the Blood of my Lord and Savior Jesus Christ.
If you'd like to share this along with what I've shared with you prior to this on one of your posts, you're more than welcome to my Sister in Christ. 

Please join your heart with mine and lift this brother of ours up to our God. Please pray he will stay dedicated to Jesus and resit the temptation to flip back. Thanks!!

NEW:

Brian Todd at Brian Todd's Blog has requested prayer for his mother in law. Below is taken directly from his blog:

Monday, July 30, 2012, my wife’s mother Shirley (83 years young) had a major back surgery procedure performed due to an advanced Scoliosis condition that, not only was tremendously painful daily, but if not corrected would become life-threatening. The curvature of her spine was so severe that her organs were being pushed to one side and the doctors estimated an eleven hour surgery would be required, with 16 pints of blood used. The surgery ended when they ran dangerously short of reserve blood, so the corrective procedure was not completed. She is currently in the Intensive Care Unit recovering from the operation and associated complication, and is rescheduled to undergo the remainder of the corrective surgery in six weeks, when she has gains strength and well enough to handle the second procedure. The main portion of the Scoliosis has been straightened, and the remaining work shall be much quicker and less life threatening. Her daughter has set up a Journal page for Shirley @ http://www.caringbridge.org/visit/shirleylowe that you can check her condition. The main thing is that she needs your intercession prayer. Your prayers are a blessing and much appreciated. Praise the Lord for such a loving godly woman.

UPDATES:
Lucy:
Lucy's scans were great. Her spine looked clear and her brain looked even better than it did a few weeks ago. It's the best birthday present I could have hoped for. Thanks for you continued prayers!







PRAYER:
Wayne:

Wayne had six weeks off from chemo to let his body rest and they were able to get away for a family vacation last week. They had a good time and were able to get some much needed time away for rest and fun.  They got back and immediately he had to have his next infusion...Monday July 31. So, this week has been rough on him. He is feeling discouraged because he just doesn't feel good. Wayne even said,  "this just isn't living". He's tired...achey...and generally just doesn't feel well. I don't know all the symptoms but I do know they aren't good. He really just needs a miracle. I know...and you know...that God is more than able. HE doesn't like for any of HIS children to be sick or suffer in any way. When you think about Wayne if you could please just say a prayer for him and Marge. They are two of the most wonderful people you could ever know and most of all...they both love the LORD with all their hearts. They have told me many times how much they appreciate all the prayers from all of you.

Chelle:
Please remember to pray for Chelle as she has a doctors appointment with the cardiologist August 10th. Pray for a complete healing and no fear! Thanks!!

Emily:

Dr Gowda emailed tonight and said the d dimer was negative and that the Mibg had been scheduled for Tuesday and Wednesday! No affirmative time until we hear from radiology! He did email Dr Sholler this morning to advise her of what has transpired at this point and that he had requested for a Mibg here in va unless she wants us to come there! We have not heard a response back from her yet!
So our biggest concern is that these spots are NB! We have taken Emily back off the nifurtimox for now because if she is progressing they will pull her from the trial anyway! We are stopping everything else until we know what is going on! 
If there are any NB moms, dads or grandparents that have had any experience with this, please let us know! We are beyond scared and worried and the anxiety is taking the best of us!
This brings our talks of where she would go for treatment if this is our worst nightmare for the 3rd time! Our hope is that these spots go away as her counts go up! Today WBC was only 500 and her ANC is only 200 so we were told Emily is still neutrapenic so to still watch for fevers and because platelets were 20 to watch for any bleeding or bruising!
Please send your love and thoughts that this is just an infection! Remember to hug and kiss your kids every night and tell them how much you love them because you never know when things can change!

Summer:
Please pray for Summer as her liver counts are off the charts and they need to come down or else she will have to have a liver transplant. Please lift our dear sister up to our God. Thanks!

Monday my Rhematologist in the area called with not great news.  My liver enzymes were off the charts.  One should be under 50 and it was 190 the other I don't even want to mention.  The culprit is the chemotherapy pills Methatrexate that I take once a week, that keeps DM down a bit.  Without it I flare so badly they can't get it under control.  I think y'all probably remember the Christmas before last, when they had to stop it for three weeks and I flared for a year, causing DM to blaze and I ended up having to do the Chemotherapy Infusions and now the IVIG/Plasma Infusion/Transfusions.

Joanna:


Dear Friends and Family,
Yesterday marked four months since the beginning of Joanna’s medical situation on April 1st. Most of the last month Joanna has spent seeing various doctors – Gastroenterologist, Acupuncturist, Chiropractor, Dermatologist (annual check), Orthopedist (hip pain), Physical Therapist. When possible and when she had the energy she would get together with various friends.
It feels like this has been a transition month for us: from full speed doctors and other events to learning how to pace ourselves. It has taken over three weeks to arrange the next tests. On Wednesday, August 8, Joanna is scheduled for an Endoscopic Ultrasound. And on Monday, August 13, she is scheduled for an Esophageal Manometry with Impedance. The follow-up appointment with her GI doctor to find out the results of these tests will be Wednesday, August 15.
This was Joanna’s Face book post yesterday:
“Today marks 4 months since this illness has taken over…yet God has been good and gracious through it all. I’m so thankful for all of your prayers, support, and comfort. Thank you!! “
Don and I thank you for your prayers as well. Please continue to pray for Divine healing, medical direction, and Joanna’s strength as the school year is rapidly approaching. Also, please pray for Don and me that would we be patient and yet wise advocates for Joanna as we work with the medical profession.

Jordan:

I don't have any recent news on Jordan as I am waiting for an update on his blog, but he has made a trip to Bethel Church in Redding California to seek prayer for healing. The last update I heard was there was as follows:
Alright … we measured tonight as we did last night and instead of growing, Jordan’s leg has shrunk by .7cm….we chose to freak out….get excited and praise God!  Feel free to do a little dance now with us.  Will write more about the weekend later… we’re tired and heading to bed.

Please praise God for this shrinkage and continue to press in for a miracle. Thanks!!

Thank you to all of you for being so faithful in standing beside these dear people who are in need of your prayers. My heart is overwhelmed with the dedication you all have. Our God is mighty and there is none like Him.

Job 26:5-14 NIV

“The dead are in deep anguish, 

    those beneath the waters and all that live in them.

Death is naked before God;

    Destruction lies uncovered. 

He spreads out the northern skies over empty space;

    he suspends the earth over nothing. 

He wraps up the waters in his clouds, 

    yet the clouds do not burst under their weight.

He covers the face of the full moon,

    spreading his clouds over it.

He marks out the horizon on the face of the waters 

    for a boundary between light and darkness. 

The pillars of the heavens quake, 

    aghast at his rebuke.

By his power he churned up the sea; 

    by his wisdom he cut Rahab to pieces.

By his breath the skies became fair;

    his hand pierced the gliding serpent. 

And these are but the outer fringe of his works;

    how faint the whisper we hear of him! 

    Who then can understand the thunder of his power?”

God Bless,
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Update on Lucy

It appears that Lucy has relapsed and Lucy will be having brain surgery in one and a half weeks. Here is a little snippet from Kate's blog:

What's interesting is that it's not the area that Atlanta said it was. Our team thinks that its a totally different issue that we will have to figure out. Instead, there appears to be areas of leptomeningeal disease. The consensus is that it's a small area and does not seem to be aggressive. 

(Leptomeningeal disease)

Depending on the out come of the surgery, Lucy will be under going another type of chemo therapy. Please continue to pray for Lucy and for her family.

I am so thankful for the doctors at St. Jude's. They are aggressively treating Lucy and doing everything they can to give this sweet girl a good quality life.

Psalm 63 NIV

O God, you are my God,

    earnestly I seek you;

my soul thirsts for you, 

    my body longs for you,

in a dry and weary land

    where there is no water.

I have seen you in the sanctuary 

    and beheld your power and your glory. 

Because your love is better than life, 

    my lips will glorify you.

I will praise you as long as I live, 

    and in your name I will lift up my hands. 

My soul will be satisfied as with the richest of foods; 

    with singing lips my mouth will praise you.

On my bed I remember you;

    I think of you through the watches of the night. 

Because you are my help, 

    I sing in the shadow of your wings. 

My soul clings to you; 

    your right hand upholds me.

They who seek my life will be destroyed; 

    they will go down to the depths of the earth. 

They will be given over to the sword 

    and become food for jackals.

But the king will rejoice in God;

    all who swear by God’s name will praise him, 

    while the mouths of liars will be silenced.

Romans 8:28 NIV
And we know that in all things God works for the good of those who love him, who have been called according to his purpose.

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Praying and praying,
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Today's Sunshine

The sunshine for this week is cows in amongst summer flowers. I just love this! On my run today, there were cows in this field of daisy's. Every year my neighbour turns out his cows to graze and every year my breath is taken away by the sight. 

Ecclesiastes 3:11 NIV

He has made everything beautiful in its time. He has also set eternity in the hearts of men; yet they cannot fathom what God has done from beginning to end.

Linking with Summer from Summer's Story for The Sunshine Project

Please keep Lucy in your prayers. Thank you!!

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Lucy

Please pray for Lucy as she had a seizure and is on her way to St. Jude's. The aggressive rehab is stopped, a MRI was taken and the results will be given on July 5th. Please pray for no tumour growth. Pray for Kate and Erik as this is very stressful on them and their nerves are frazzled. Thanks!!

Psalm 30:1-3 NIV

I will exalt you, O Lord,
    for you lifted me out of the depths 
    and did not let my enemies gloat over me. 
O Lord my God, I called to you for help 
    and you healed me. 
O Lord, you brought me up from the grave; 
    you spared me from going down into the pit.

Praying and praying

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Lucy Update! :)

Lucy update!! Below is taken directly from Lucy's blog 2 3 Kids, a Mini Van and a Mortgage. 


Please read this thoroughly and take no more from it than what I am telling you.


Over the last few days we received conflicting opinions about Lucy’s recent medical events.  It has taken a long time for us to process this new information and we still aren’t quite sure what to think about it.  We have spent many hours consulting doctors, trying to make some really big decisions.  In a nutshell, there may possibly be some conflicting results about Lucy’s cancer reoccurrence.  I want to stress POSSIBLY.  I want to be very clear.  Lucy had a positive test from her CSF.  It’s hard to deny that fact. However, while we haven’t been able to rule it out we haven’t confirmed it either.  What has come into question is that there is a chance those cells were distorted by high doses of antibiotics, the infection, or the very high fever that Lucy ran for 2 days. 


Please understand that we are being very cautious with this information.  We can’t allow ourselves to get carried away, because there is a positive test out there that will hang over our heads for a while.  The doctors will retest in 6 weeks and then retest again 6 weeks later. 



Folks, it looks to me like God is healing Lucy! Please continue to press in with me for a miracle of no cancer! Pray and pray and don't stop reminding God of His promises for healing. If you haven't yet, please stop by and leave Kate, Lucy's mom, an encouraging comment or a Bible verse. This, prayer warriors, is a miracle! Thank you JESUS!


Psalm 103:1-5 NIV

Praise the Lord, O my soul; 

    all my inmost being, praise his holy name. 

Praise the Lord, O my soul,

    and forget not all his benefits—

who forgives all your sins 

    and heals all your diseases,

who redeems your life from the pit

    and crowns you with love and compassion, 

who satisfies your desires with good things

    so that your youth is renewed like the eagle’s.

Praying and praying,

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More About Lucy

This morning I opened my reader and there was an amazing post from Kate, Lucy's mom 2 3 Kids, a Minivan and a Mortgage. Lucy woke up and was talking for 15 minutes!! There is a video posted so if you are interested please head over there and see this sweet, amazing girl!!

It looks like Lucy's sight will return!! Praise God!! Please, please continue to press in with prayer. This is a miracle!

Below is taken directly from Kate's blog:


What we know:

An event happened in Lucy's body that caused 40 C (over 104.5 F) fever that persisted for more than 48 hours. 
This event caused her body to shut down and the high fever is likely to have caused the seizures. 
She has lost most of her ability to communicate, minus brief comments and interactions.  All of which I must note are purposeful and meaningful. 
We do know that her vision has been greatly impaired.  We think she might be able to see something, although we are not sure what or how much.  She can not make out faces and can't even tell you if you are holding up a ball in front of her face, but she seems to be tracking.  
During periods of awake time she is consumed with frustration, fear and confusion.  She cries for long periods of time although she does not appear to be in pain.   


Theories and Facts:
The doctors are beginning to think that maybe Pink Eye led to a viral infection that leaked into Lucy's brain.  Possibly through the shunt.  This we will probably never know.  
Today's EEG revealed NO seizure activity and NO brain damage.  PRAISE GOD!!!!!!!!
Today's EEG did reveal a very tired brain that had a lot of recovering to do.
The doctors do not feel as if the eye sight issues are permanent.  This, however, can not be verified until an Opthamologist is able to do a thorough exam.  That will probably not happen until Wednesday. 
Most, if not all, of Lucy's deficits are reversible and Lucy should make a pretty strong recovery. 


Please praise God with me and press in for 100% healing. It was such a blessing to see such encouragement and to hear the excitement in everyone's voice. God gives us hope and so we press in with hope that He will continue to heal Lucy and restore to complete health here on earth.

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1 Timothy 4:9-10 NIV
This is a trustworthy saying that deserves full acceptance (and for this we labor and strive), that we have put our hope in the living God, who is the Savior of all men, and especially of those who believe.


Praying and praying,
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Daddy's Compassion

Psalm 103 NIV

Praise the Lord, O my soul; 

    all my inmost being, praise his holy name. 

Praise the Lord, O my soul,

    and forget not all his benefits—

who forgives all your sins 

    and heals all your diseases,

who redeems your life from the pit

    and crowns you with love and compassion, 

who satisfies your desires with good things

    so that your youth is renewed like the eagle’s.

The Lord works righteousness 

    and justice for all the oppressed.

He made known his ways to Moses,

    his deeds to the people of Israel:

The Lord is compassionate and gracious, 

    slow to anger, abounding in love.

He will not always accuse,

    nor will he harbor his anger forever; 

he does not treat us as our sins deserve 

    or repay us according to our iniquities.

For as high as the heavens are above the earth,

    so great is his love for those who fear him; 

as far as the east is from the west,

    so far has he removed our transgressions from us.

As a father has compassion on his children,

    so the Lord has compassion on those who fear him;

for he knows how we are formed, 

    he remembers that we are dust. 

As for man, his days are like grass, 

    he flourishes like a flower of the field;

the wind blows over it and it is gone,

    and its place remembers it no more.

But from everlasting to everlasting

    the Lord’s love is with those who fear him,

    and his righteousness with their children’s children —

with those who keep his covenant 

    and remember to obey his precepts.

The Lord has established his throne in heaven,

    and his kingdom rules over all.

Praise the Lord, you his angels, 

    you mighty ones who do his bidding, 

    who obey his word.

Praise the Lord, all his heavenly hosts, 

    you his servants who do his will.

Praise the Lord, all his works 

    everywhere in his dominion.

Praise the Lord, O my soul.

I asked God what He wanted me to post for this Sunday's Fresh Brewed Sunday post and He kept reminding me of Brenda from Lighthouse Vision and her prayer of Psalm 103 over Lucy. So I apologize for this long scripture but I believe God wants this prayed over Lucy, Sam, Keira, Jordan and Summer and the others on this blog's prayer page as well. Please stand in the gap intercessing for 100% health here on earth for these dear children of God. If you wish to leave them some encouragement and love, click on their names and you will be directed to their blog. Thank you!

I'm linking up with Barbie, Fresh Brewed Sunday.

Blessings,

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Prayer Warriors/Updated

Here is an update with specific prayer requests for Lucy. Please spend sometime intercessing for this sweet young girl and her dear family. Thank you!!

Many have asked for specific prayer needs. I will list a few but know that blankets of prayer are needed because there are so many specific needs that I can't even begin to wrap my mind around them:


-rest, mercy and no suffering for Lucy
-understanding and no fear for Ella
-a constant remembrance of my love to fill Jack
-Lucy's father. My precious husband. May he continue to grieve and not feel as If he has to be strong for any of us
-Lucy's grandparents and immediate /extended families
-restored faith for all of Lucy's friends and all the little children who have been praying ceaselessly for healing. 
-Lucy's doctors, nurses and other care team members
-eventual healing for our family


Much love--Kate


Cancer is back and there is nothing the doctors can do for Lucy. Please, please press in with me and seek healing here on earth.. Pray for God to send over whelming peace and comfort to Erik and Kate, Ella, Jack and sweet Lucy. 

My heart is breaking in two, I just can not imagine how crushed this family is right now. Please lift them up to our amazing God. Even though we don't understand His ways I know that His ways are better than ours and He is always good no matter what happens.

Philippians 4:6-7 NIV
Do not be anxious about anything, but in everything, by prayer and petition, with thanksgiving, present your requests to God. And the peace of God, which transcends all understanding, will guard your hearts and your minds in Christ Jesus.

Praying and praying and not giving up hope.
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Lucy

Lucy

Please visit the prayer page for an update on Lucy. She is deeply in need of prayer, please lift her and her family up to our God. Thanks!!

Psalm 27:1-3 NIV

The Lord is my light and my salvation —

    whom shall I fear?

The Lord is the stronghold of my life—

    of whom shall I be afraid? 

When evil men advance against me

    to devour my flesh,

when my enemies and my foes attack me,

    they will stumble and fall. 

Though an army besiege me,

    my heart will not fear; 

though war break out against me,

    even then will I be confident.

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News & Updates

Quinn

Quinn

Marc, Quinn's dad will be running in a half marathon in order to raise awareness for EB, Epidermolysis Bullosa, in Akron, Ohio. If you live in this area and you are a runner why not train for and run this half marathon and join the other Butterfly Army and raise awareness for EB. Maybe you are not a runner but would like to contribute, why don't you advertise this event on your blog and see if there are any others out there that would like to be a part of this. If you are interested in racing, please visit Quinn's blog and leave a comment letting Marc know. You need to sign up with your email address in order to access her site. Thanks!!
Below is taken from Quinn's CarringBride Site.

One last thing that I just didn't think to ask. I mentioned my own efforts to run the Akron Half Marathon September 29, 2012. And then one of my best friends asked if he could train and run it with me and later he said his brother-in-law was going to join us too. And it got me thinking....why not have a whole swarm of butterfly army members all run it together??? How cool would it be to have a whole swarm of purple shirts. Can you imagine the buzz we could create for EB with everyone wondering what all the shirts are about!!!!!!! If you want to be in, start running now, the more people the better. 

Ian

Ian
Just had some scans this past Thursday and I found out last night they were clear!! Praise God!! His mom, Alison, was concerned because if these scans came back showing new cancer then there would be no more treatment for Ian. Please continue to cover Ian in prayer as he will be having another set of scans in 3 mths. Please continue to pray for NED! No evidence of disease.

Lucy
Just had scans last Thursday as well and they came back clear!! Praise God!! NED!! Continue to pray for her as well!!

Summer

Summer WOOT!!! Praise GOD!! This medicine combination is WORKING!! Her muscles are getting stronger. Please continue to join me in prayer for remission.

God is so good!

Psalm 43:4-5 NIV

Then I will go to the altar of God, 

To God my exceeding joy; 

And upon the lyre I shall praise You, O God, my God.

Why are you in despair, O my soul? 

And why are you disturbed within me? 

Hope in God, for I shall again praise Him, 

The help of my countenance and my God.

Thank you for praying and rejoicing with me.
Blessings,
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